some one very close to me has OI (soft bones) and her leg has started to bow between her knee and ankle it hurts all the time and she cant put any weight on it. i took her to the doctor today and he said that he didnt know any thing about OI and he wasnt gonna fool with helping her and because it is such a high risk condition he didnt know of a doctor around here who would. we are both poor so we cant travel very far for help. i dont know what to do she is in such pain and no one will help her. Additional Details2 weeks agothats a good site, we are not looking for a cure we need some one to either put a rod in the bone or a brace. befor the bone breaks
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first to find out more about the disease there is a website you can go to it is: http://www.clevelandclinic.org/health/he...

based on the website there is no cure for the disease and all they do is manage the pain. but i dont believe that is ever an answer, i have a suggestion if your friend is willing to listen. you need to check out www.mysuccessmagnet.com and then call me at 1-877-LIFE-711. i can put you in touch with doctors and nurses that can give you valuable information and guidence.

in the meantime i wish you the best of luck

Source(s):
www.mysuccessmagnet.com
http://www.clevelandclinic.org/health/he...